In this heartfelt episode of “Loving Is”, host Jen Loving sits down with Linda Keely to explore the transformative power of unconditional love. Together, they delve into the importance of being present and vulnerable, emphasizing that our worth is not defined by our achievements or constant productivity. Join Jen and Linda as they share personal stories and insights, reminding us that we are inherently deserving of love simply for being ourselves. Tune in to discover how embracing presence over performance can lead to deeper connections and a more fulfilling life.
Ehlers Danlos Syndrome: A Story of Resilience S1E35
Effie Siverts is a 44-year-old mother of two teenage boys. From childhood, she was challenged with many unusual health conditions such as extreme flexibility (and dreams of becoming a contortionist), easy bruising, heart arrhythmia by age 6, chronic respiratory illness, rib and joint subluxations, Si joint dysfunction, GI issues, and recurrent throat abscesses.
By her early twenties, doctors would joke that they should do a study of her but only provided a simple diagnosis of benign hypermobility syndrome and told her to 'live life carefully'. Daily living tasks were a struggle and pregnancies had their risks and complications. By age 38, Effie had spent 29 years in chiropractic care and 15+ years in and out of physical and pelvic therapies only to undergo major pelvic and abdominal reconstructive surgery due to hernias and prolapsing weak connective tissues.
Ongoing post-operative prolapse led Effie to finally receive the diagnosis of a genetic disorder called Ehlers-Danlos Syndrome (Type 3 Hypermobility). This diagnosis connected her lifelong struggles under the umbrella of this condition - an abnormality in how her body produces collagen, therefore affecting every facet of her body. Currently, coping and management strategies are the only tools available, and now Effie is teaching her strategies to her children who are manifesting symptoms of their own.
Connect with Effie:
https://effie.fit/
https://instagram.com/strongward.effi...
https://www.facebook.com/effie.fit
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www.hydrowithhope.com
Michelle Steiner lives with an invisible disability. She has a Dyscalculia a math learning disability, limited hand dexterity, and visual perception issues. Her disability has made things such as math, and driving impossible.
Diagnosed as a young child in kindergarten, living with one has become a way of life, and has had to learn different ways to learn and live. She has articles published on The Mighty, Non-Verbal Learning Project, Dyscalculia Blog, The Reluctant Spoonie, Kalopina Collective, Imagine the World as One Magazine, and Word Gathering. Her photographs were featured in Word Gathering, Independent and Work Ready. She works as a para-educator in a school with students with disabilities. She lives in Pennsylvania with her husband and two cats.
Connect with Michelle:
https://www.facebook.com/people/Miche...
https://www.instagram.com/steiner7250/
https://www.linkedin.com/in/michelle-...
michellesmission.net
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Dr. Jamie Wright is a neurology resident at the University of Washington in Seattle, Washington. She grew up in north Texas where she earned a Bachelor's Degree in Molecular Biology at the University of Texas in Dallas. She went on to do a combined MD and PhD program at the University of Texas at Houston McGovern Medical School. She was inspired to pursue a career in both neurology and research by her own experiences growing up with a life-threatening, invisible illness, congenital hydrocephalus.
Hydrocephalus is caused by an abnormal build-up of fluid in the brain. The only current treatments for hydrocephalus are brain surgery, including placing a shunt to drain the fluid from the brain or making a new opening for the fluid through an endoscopic third ventriculostomy (ETV). Dr. Wright has undergone 18 neurologic surgeries to treat her hydrocephalus, including shunt surgeries, an ETV, and intracranial pressure monitoring. In addition to hydrocephalus, she also lives with multiple other invisible conditions, including corneal dystrophy, autonomic dysfunction, and gastroparesis.
Despite these challenges, she is dedicated to helping others living with chronic illness, through her work as a doctor, research, and advocacy work.
Ashlee is a young woman living with multiple chronic illnesses. She has spent a lot of her life in and out of the hospital and that influenced her professional and personal life. She never came across a member of her treatment team that wasn’t able-bodied and understood her world view as a woman with disability, so that inspired her to pursue a career in social work, advocacy, and empowerment.
Defying the Diagnosis: Triumph Over Endometriosis S1E26
Michelle Menkal’s health challenges began when, at a young age, doctors removed an orange-sized cyst from your uterus. This was the start of an ongoing struggle with endometriosis, PCOS, and fertility struggles. Although she endured miscarriages, including the loss of twins, she remained resilient, and now has 2 wonderful children. At 35 years of age, she made the brave decision to have a hysterectomy, ending her battle with endometriosis, but kicking off early menopause and hormone imbalance. Despite these challenges, today Michelle runs a thriving business, and shares her story through writing. She aims to inspire others facing similar challenges and provide HOPE amidst adversity. Listen to the show to hear her tips for dealing with these challenges!
Connect with Michelle:
https://www.facebook.com/profile.php?...
https://www.facebook.com/spickandspan...
https://www.linkedin.com/in/michelle-...
https://www.instagram.com/michellemenkal
www.spickandspancolorado.com
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Lori Landin is an International Speaker, Philanthropist, Visionary, and the Founder of THE LORI LANDIN FOUNDATION: a global non-profit organization serving those in need throughout the world. She is a Certified Challenge Consultant, Optimal Life Designer, a Board-Certified Health Coach, and a Certified Essential Oil Coach. Lori has a Master Degree in Music Conducting, extensive experience in Music & Theatre, and is the Founder of THE GIVING HEART MOVEMENT: a global movement based on kindness and giving. She is also a musician, a conductor, a mentor, and an educator.
Lori has experienced many of life's trials, but she acknowledges that they were pivotal moments in her life. One of those trials was being diagnosed with an ""incurable illness"" which she has been able to conquer naturally. That illness is one of those pivotal moments that has led her to become who and what she is today. Through her experiences, she has learned that ""The Obstacle Is The Way"" and ""The Giver Truly Is The Receiver"".
Coaching page:
https://www.facebook.com/lorilandin.c...
www.lorilandin.com
www.thelorilandinfoundation.org
www.challengeconsultingbylori.com
My personal profile:
https://www.facebook.com/lorijlandin?...
My foundation page:
https://www.facebook.com/TheLoriLandi...
https://www.linkedin.com/in/lorilandin
Francisca "Frankie" Huff is 39 years old and lives with Crohn’s disease. She was first diagnosed with Crohn’s 26 years ago. She had one surgery in her early 20’s because part of the intestines became so inflamed that medication was no longer helping. Four inches of the intestines were removed in 2004 and she has been in remission since then! No medication, no symptoms. She's a firm believer now of a healthy lifestyle, so she became a personal trainer to help others and to inspire others that if there’s a will there’s a way.
Miguel Bautista is a dedicated advocate and educator in the fields of Chronic Fatigue Syndrome (CFS), Dysautonomia, and Long Covid. Having personally navigated the challenges of these conditions, he understands their profound impact on daily life and the urgent need for effective solutions.
Through his groundbreaking program, he has helped countless individuals reclaim their health and vitality. His passion is driven not only by his professional commitment but by his personal connection to these conditions, making him a sought-after voice in the health and wellness community.
Connect with Miguel:
https://www.instagram.com/cfsrecovery...
/ @cfsrecovery
https://www.facebook.com/groups/58678...
Connect with the Host:
www.hydrowithhope.com
Charlie and Keri Stivers are single parents of 2 living in Colorado. They are both entrepreneurs and business owners by necessity. Charlie publishes GOOSE Magazine helping people discover and learn about cryptocurrency.
Keri runs Dry Cleaning Valets, a pick-up and delivery service. Being business owners gives them control over their schedules to be available and present in their children’s lives.
Their 12yr old daughter, Lulu, has been living with a Chiari Malformation, a birth defect, which is a condition in which brain tissue protrudes into the spinal column through the base of the skull. Her symptoms are a daily concern and every morning she wakes up they are grateful. Raising a child who has an invisible condition has made them more compassionate for all who battle a health disability hidden in plain sight. As a family, they fight for compassion, understanding, and resources to help families become self-reliant as possible. They want to share their Chiari journey and bring awareness to the condition.
Beyond the Pain: Triumph Over Rheumatoid Arthritis S1E49
Dr. Kristin Wild is an award winning holistic health educator, entrepreneur & speaker. She holds a PhD in Metaphysics and diploma in Applied Psychology. She is the creator of the therapy modality called Awareness Therapy and founder of Modern Health Solution. She is best known for supporting people in navigating chronic physical and mental health conditions and for her work in helping women and children escape and heal from domestic abuse.
Kristin herself went through a ten year journey through three different autoimmune diagnosis: rheumatoid arthritis, graves, and lupus. At one point she was bed ridden with her organs shutting down and was told she required four joint replacement surgeries. Today, Kristin lives and full and healthy life and has reversed the need for any surgeries.
Connect with Kristin:
https://linktr.ee/modernhealthsolution
Connect with the host:
www.hydrowithhope.com
Thomas spent more than 25 years as a marketing and communications executive for organizations of various sizes and missions, from a major international corporation to an international volunteer agency (Peace Corps) to five major universities.
In January of 2021, he co-founded Exact Nature Botanicals with his son Daniel, a company with a singular mission to provide CBD-based products to help people in recovery face the addictive cravings and changes in mood and sleep patterns that can come in sobriety. In business nearly three years now, Exact Nature has sold its products to people in all 50 states looking for help in sobriety.
Connect with Thomas:
https://www.facebook.com/ExactNature
https://www.instagram.com/exactnature...
https://twitter.com/exactnature
Connect with the host:
www.hydrowithhope.com
Monica Norcross has been in the fitness and wellness industry for over twelve years. She’s a Certified Personal Trainer, a Fitness Nutrition Specialist, COPE Certified, and a licensed Zumba Instructor. She’s the founder and developer of The Still Workout™, a practice designed to bring strength, freedom, renewal and peace to the brain, body and soul, based on Psalm 46:10 “Be still and know that I am God.” She says, “The Still Workout™ has changed my life. I have no more chronic pain or anxiety, I’m building muscular endurance and strength, my relationship with Jesus is growing, and it’s the most exciting thing in the world to see others find the same results.” She lives in Magnolia, Texas with her husband and her dog.
In early 2016, at age 55, Kathi McCarty led a very fulfilling and busy life in the Foothills west of Denver, Colorado, as a single Mom of 3 kiddos, and VP/Manager of a large Denver-area Bank branch. Then, her life changed nearly overnight. It began with dry, gritty eyes, as if she had endured a sandstorm. Not long after that Kathi woke up with double vision.
A diagnosis of Graves Disease, TEDs (Thyroid Eye Disease), and four eye surgeries later, Kathi learned to adjust to her disability, and others’ reactions to it. “People can’t actually see your wound,” she says. She learned from personal experience there is a huge stigma with that, and she learned to navigate the prejudice that comes with having an illness that affects her sight with permanent double vision.
Ultimately, gratitude is her attitude. She learned among many other lessons, when you’re in a life-altering situation, you can take one of two paths – curl up, or catapult into the next chapter.
Jackie Nairne is a CBD/Hemp Wellness Advocate and Educator. She is extremely knowledgeable in all things CBD and hemp from the historical evolution and industry updates to enlightening people regarding the Endocannabinoid System, how and why CBD is so effective in simultaneously addressing sleep, pain, anxiousness, mood, focus.
Also, dispelling myths and misconceptions — knowing how to ensure quality in this unregulated industry — and how to successfully integrate it into one's health and wellness regimen for maximum benefit for men, women, kids, and fur babies. Her passion is introducing others to this health option, helping with product selection, and dosing to achieve maximum effectiveness. She is excited to share with us how hemp wellness can benefit invisible conditions, and all she has witnessed working with others who suffer from them.
Connect with Jackie:
https://linktr.ee/Jnairne
Connect with the host:
www.hydrowithhope.com
Uncovering the Mystery & Beauty of Schizophrenia S1E33
Bernadette Desir is a Haitian Canadian adoptee and a mother of two. She lives with several mental health diagnoses, including schizophrenia, PTSD, anxiety, and depression. Bernadette enjoys expressing herself through the art she creates. Also, advocating for mental health is a cause close to Bernadette’s heart, and she expresses her passion through her podcast. The Unleashing Potentials Podcast provides a safe platform for people to come as they are and share their stories. Bernadette creates an open and supportive space where individuals can freely talk about their experiences and struggles with mental health.
Connect with Bernadette:
/ @theunleashingpot...
https://www.facebook.com/groups/11315...
https://www.instagram.com/bernadette2...
unleash2potentials@gmail.com
Connect with the host:
www.hydrowithhope.com
Join us to hear from Angie Clayton about living as a ""Sarc warrior,"" which makes her one of two in a million that experience this condition. Angie is an author, speaker and blogger who has a passion for ministering to the grieving. Some of her writing reflects those experiences. She is a storyteller, and her blog, Framing the Days, shares with you the joys and beauty of both the mountain tops and the valleys of her life. She has a ministry of presence, and spends much time with grieving women. Her book, “Peering into the Tunnel: An Outsider’s Look into Grief,” is a collection of real stories, as well as helpful suggestions for how to come alongside someone who is grieving.
Angie has been married to Greg for over three decades. They live in the Kansas City area and have 2 grown children and four grandchildren. Angie is “Nini” to them, and she loves spending time with them.
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Living with chronic medical conditions – especially when they’re invisible to most people – can be tough. We are here to help people find HOPE and encouragement in the midst of the mental and physical struggles that come from living with invisible conditions.
Catherine grew up in Ft. Collins, Colorado, where she met Jeff in Junior High School. After graduating from the University of Northern Colorado with a Bachelor’s degree, she and Jeff got married and moved to Colorado Springs. She soon discovered her passion for healthy eating and natural living, which led her to earn a certification as an Integrative Nutrition Health Coach and Certified Recovery Nutrition Coach. Catherine is also passionate about supporting Jeff to serve the hydrocephalus and invisible condition community. Together they started Hydro with Hope to provide tangible resources and support to the Hydrocephalus community. Their biggest accomplishment so far is a personalized journal specific to individuals and families living with the challenges of hydrocephalus. In addition to being a loving wife to Jeff, Catherine is also a proud mama to three wonderful teenagers.
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Phyllis Marlene Benstein has a Bachelor of Science in Electrical Engineering (BSEE) and was previously employed as an Engineer for over 25 years. She now has multiple thriving businesses in the beauty, fashion, and networking industries. In 2014, during an arctic storm in Illinois, she went out to run some errands. When she got back home she parked at the end of her driveway and, in the process of bringing things in from the car, she slipped on ice and banged her chin on the driveway three times, jarring her brain. The next day she felt like she had been in a car accident, with aches and pains all over, a worsening headache, and double & triple vision. A concussion specialist verified that she had a concussion. It took years to get over the headaches and the eye issues, and some long-term effects still occur. All this has not stopped her from continuing to be successful. As a sought-after transformational expert, through her knowledge of makeup and fashion, and bolstered by her background in Engineering, leadership, and networking, Phyllis is a multi-faceted powerhouse.
Website/Social media links:
Phyllis.Phyllismarlene.com
Https://www.linkedin.com/in/phyllismarlenebenstein
Dr. Cyrina Bullard was a practicing pharmacist for over 20 years until multiple life-changing events, near-death experiences and suffering from two brain injuries made her pivot. This forced her to deepen her knowledge of the brain and how to optimize her brain health. Along the way, she discovered a passion for science-based techniques to improve brain health, strengthen resilience, increase happiness, and help people to live their best lives.
She now shares her unique blend of science-based and motivational tools to help her audiences be resilient, Catch Happiness® and create fulfilling lives of design instead of default. Dr. Bullard has certifications from UC Berkeley, Yale, HeartMath®, Conversational Intelligence®, Life Mastery Consultants and is an Amazon best-selling author with her book C3 Creating Conscious Connections. In her book, she shares the challenges she has overcome, and the lessons learned along the way.
